What is spinal muscular atrophy (SMA)?

“Spinal muscular atrophy (SMA) is a rare condition that affects the nerve cells that control muscle movement. It causes muscle weakness that eventually leads to muscle wasting.” said Alberta’s Minister of Health Jason Copping in a statement to address SMA’s awareness month.

August is SMA’s awareness month where one in every 10,000 births in Alberta are subject to the disease, or five to six babies a year.

Early treatment of SMA is critical as it can slow the development of the disease. However, the disease can cause death within two years if left untreated in severe situations.

Copping adds the government is working on providing more supports and treatments for the people and families affected by the disease.

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“Last year we added Zolgensma, a one-time gene therapy, to Alberta’s Rare Disease Coverage Program,” said Copping. “This year we started a pilot program to provide newborn screening for the disease. Early diagnosis will provide babies and families access to life-changing treatments sooner, when treatments are the most effective, and timely access to the referrals they need.”

Copping is asking Albertans to show compassion and support to people affected by SMA during SMA’s awareness month.